This is our beautiful Julie, she is currently almost 21 years old and received a Sony DSC-S650 Digital camera for Christmas. We created her own Web Album and since Julie cannot write or read, I did the captions... trying to think the way she does. This will be updated periodically. We are very proud of our dearest Angel. Here is her new webalbum site.
If you are a new parent of a Down Syndrome child and are confused or even if you hurt, please contact us. There are many wonderful things that you may not know about this wonderful unique type of individual. Do talk to other parents to discover an entire universe of bliss... believe me.
2 comments:
I stumbled across your site as I was searching for more information on Down syndrome. Our son, who is four months old, has DS and is doing fine after having heart surgery.
I see we share a common passion for film; I am a professional video producer and work for a company shooting and editing commercials and training films. I would love to hear more about what you do in Canada.
Just thought I'd drop in and introduce myself. You can follow my link to read more about our journey thus far... Cheers,
In Him.
Hello Tom,
Thank you so much for your email.
Re: Film, I have just Produced my first film (HD) (Short Canadian Comedy – parody of Canadianism in general – satire of Federalists vs Separatists in the context of our Canadian Immigration). You can see photos here: http://picasaweb.google.com/plasmaphotos The Short is called Bollywood North. Currently we are working on two other ventures: an 8 minute short to be presented at the Toronto Film Festival for September 2008 and a Feature Film involving the “discovery” of the Holy Grail. We are currently looking to distribute our BN movie and find Executive Producers for our next ventures. I am waiting to read the script of our new projects to green light them.
You also seem to be a Christian. I invite you to visit my site and comment and participate. I am not associated with any specific Churches. www.OkChrist.com. I don’t go anywhere. I find myself too liberal for most Churches and am fed up for being “judged” for no good reasons. I actually think Christ was very liberal.
As to the birth of your wonderful son, I know how difficult it is at the beginning accepting to become the Father of a child with an intellectual handicap. To be frank with you Tom, during the first 3 weeks of Julie’s life, I actually, secretly, in my heart, wished her dead. I will forever regret these horrible sentiments but it is true. What changed me was a letter received from a woman who had given birth to an autistic child and she admitted in her letter that she also wanted her child dead. Right at that moment… that very instant… I broke down and cried like a baby. It was at that moment that I realized that my daughter Julie had nothing to do with her condition and instead of wanting her dead, I decided to the contrary, I shall protect that child and ensure her happiness. “It was not her fault… she did nothing wrong and she is part of our lives” I never turned back. Ever. Not even for one single instant. I started to become attached to her and in time, as years went on, we realized as a family (Julie is our fourth child) how special and wonderful these children are. In our case, her health was very fragile at times. She would catch a simple cold and would have to be brought to the hospital and more than once the doctors told us that they did not think she would survive the night. It was hell, as parents. But she always found a way to come back to health. From her first few months, she became very funny… the sunshine of our lives… and to this day (she will soon be 21), she is hilarious and we all have an amazing amount of fun with her. She is just so pure, unaffected by the way humans general grow. There is not one single ounce of wickedness in her and I have never seen such docile children. She is so meek that it sometimes hurts… but man is she ever amazing. I have come to the point where I don’t know if I want to have her “normal” any longer. Probably, but we would lose so much.
Be patient. In time, if not already, you will fall head over heals for your son. Each simple development will become a huge event in your home. You will see. Love him. And you can almost be certain that you will never love him as much as he will love you. These kids are Love incarnate. I think Christ must have been very similar as a “perfect” child as DS are.
I may publish my response to you on my blog for other parents benefit… but thank you again for writing and sharing.
Philippe Paquette
(Sorry for the mistakes, I am French speaking).
PS – One thing we (our Company – Plasma Film Inc.) need is an Editor. We don’t have one and it is hell for us to edit. Maybe we may contribute in the future on this issue. Let’s keep in touch.
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